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oops http://www.geocities.com/jdgargoylewis/asmsfaq.html?1021484056350 — Take Care : ) JulieD "jdgargoyle" <jdanel…@uspower.net> wrote in message

news:aklisg$1d7gk8$1@ID-85198.news.dfncis.de… | Hello!!! |  Welcome to the English Version of the ASMS FAQ. For the Spanish Version of | the ASMS FAQ please see the following: | |  Bienvenidos a ASMS, grupo de apoyo para los afectados de esclerosis | multiple o interesados en la enfermedad.  Pagina de Lluis Compte: | |  http://usuarios.lycos.es/lluiscompte/esclerosi./asms.htm | | All information in this ASMS FAQ* is a combination of information provided | by the members of the ALT.SUPPORT.MULT-SCLEROSIS USENET GROUP otherwise | known as ASMS | |  The FAQ also contains Nettiquette (suggestions for posting) information, | links to helpful technical sites for newer users. | |  Index | |  What is Multiple Sclerosis? | |  Accepted Categories of Multiple Sclerosis | |  Common Symptoms of Multiple Sclerosis | |  Current Approved Treatments to slow progression | |  Posting Etiquette | |  Helpful Links | | What is Multiple Sclerosis? | | | |  Multiple Sclerosis (MS) is an inflammatory disease of the Central Nervous | System (CNS) – that’s the brain and spinal cord. Predominantly, it is a | disease of the connective "white matter" tissue. The white matter is made up | of nerve fibers. Nerve fibers are responsible for transmitting communication | signals both internally within the CNS and between the CNS and the nerves | supplying rest of the body. | |  In people affected by MS, patches of damage called plaques or lesions | appear in seemingly random areas of the CNS white matter. At the site of a | lesion, a nerve insulating material, called myelin, is lost. Clinically, MS | is a hard condition to characterize because it is very unpredictable and | variable. Depending on which areas of the CNS are affected and how badly | they are damaged, the type and severity of symptoms can vary greatly. | |  No two people get MS in exactly the same way and the expression of each | individual’s disease is as unique as their fingerprints. However, the | different courses of the disease, both within an individual and within the | whole population, principally differ in their timing, location and severity. | Underneath similar processes (including demyelination and other forms of | nerve degeneration) are going on. | | Although recent research indicates that the biochemical make-up of lesions | may vary between different forms of the disease, this is not the reason why | people with MS (PwMS) have such widely differing symptoms – it’s because | nerve damage to one site usually causes completely different symptoms to | damage to another. | |  In general, people with MS can experience partial or complete loss of any | function that is controlled by, or passes through, the brain or spinal cord. | |  Copied from Paul Jones’s Site, a member of ASMS located at | http://www.mult-sclerosis.org/whatisms.html | | Accepted Categories of MS These categories change frequently as Medical | Research moves forward. | |  Please understand that no two people get MS in exactly the same way and the | expression of each individual’s disease is as unique as their fingerprints. | The following are the current categories of the disease. Not all people with | MS fit into these categories. These are general definitions only. | | MS is not a disease that every person afflicted with MS fits into these | categories neatly. It varies from person to person, which is possibly the | main cause of not finding a cure. Is it viral? Genetic? Bacterial? A | combination of all three? Is it a lack of a certain vitamin? | | Throughout the years there have been many theories as to the cause, however | a cure or cause has not been found currently. | |  Relapsing Remitting/ Recessive Remissive Multiple Sclerosis or RRMS* | |  One feels sick and has one or more symptoms during a relapse. Sometimes | these symptoms seem relatively minor (if one is diagnosed) and sometimes | they are overwhelming. Between the relapses are stretches of time of varying | lengths where one feels well even though one may have some residual | disability from prior relapses. | |  Usually one never knows when a relapse will come or what will activate the | disease process. A relapse can totally remit or there can be some residual | symptoms that do not change until there is another relapse. | |  Secondary Progressive or SPMS* | |  Secondary progressive multiple sclerosis is another form of | relapsing -remitting disease. This begins as relapsing-remitting MS but | changes so that there is also constant progression. There is a slow or quick | downhill slide resulting in increased loss of function. | At the same time, it is possible for remissions to occur. A remission | improves the symptoms of the relapse but often there is no true recovery of | the prior state of health. These symptoms usually slowly continue to | deteriorate physical and/or cognitive function. | |  Primary Progressive Multiple Sclerosis or PPMS* | |  Primary progressive disease is a slow or more rapid deterioration of | physical and/or cognitive function without evidence of any relapse. There is | a loss of function from the beginning and that continues at differing rates | in different people. | | There are sometimes plateaus in both of the progressive forms of the | disease. These plateaus can vary in time. There usually is little or no | improvement of symptoms in Primary Progressive or Secondary Progressive. | | However, through a healthy diet and exercise, such as swimming, yoga, and | other types of less physical exercise, progression has been known to be | slowed or in the rarest of cases possibly stopped progression. | |  Benign MS | |  Benign MS forms a subset of Relapsing-Remitting MS as defined by Lubin and | Reingold and is generally not considered to be one of the major forms of MS, | it’s just a milder presentation. In any event, it takes 10-15 years to | diagnose benign MS (depending on which school your neuro belongs to) – part | of the definition of benign is that 10-15 years have elapsed without | significant enduring disability. | |  Plenty of people with benign MS go on to develop Secondary-Progressive MS. | "… the label "benign multiple sclerosis" is often temporary as apparently | benign disease often becomes disabling" (Hawkins and McDonnell, J | Neurol Nuerosurgery Psychiatry, 1999). | |  Progressive Relapsing Multiple Sclerosis (PRMS)* | |  *PRMS is one of the four principle forms of MS – RRMS, SPMS, PPMS and | PRMS – as defined by Lubin and Reingold, Neurology, 1996. Recently a few | neurologists have hypothesized that PRMS is really a variant of | Primary-Progressive but this is not official doctrine. | |  Malignant MS | |  Also known as Marburg’s Variant and Acute Multiple Sclerosis. This is a | label given to forms of MS where the disease progresses very rapidly from | onset leading to severe disability within a relatively short period of time. | Fortunately, this form of MS is extremely rare | |  Transitional/ Progressive MS | |  This form of MS follows a progressive course from onset, punctuated by | relapses. There is significant recovery immediately following a relapse but | between relapses there is a gradual worsening of symptoms. | |  Chronic Progressive MS |  Primary Progressive and Secondary Progressive used to be lumped together as | Chronic Progressive (CPMS) but this term is no longer officially recognized | although you will still see it referred to now and then. | |  Devic’s Disease | |  Also known as Neuromyelitis Optica, Devic’s disease is a related condition | to multiple sclerosis that is characterized by an attack of Optic Neuritis | in both eyes followed by severe inflammation of the spinal cord. (Transverse | Myelopathy). | |  Balo’s concentric sclerosis | |  This is another very rare disease that resembles multiple sclerosis. | Clinically, it is very hard to distinguish Balo’s concentric sclerosis from | MS but MRI scans show the lesions in Balo’s to be concentric rings of intact | myelin and demyelinated zones. It is more common in China and the | Philippines than elsewhere | |  *Indicates the current 4 major categories currently in use as defined by | Lubin and Reingold, Neurology, 1996. | |  Medications should be discussed with a neurologist who is an expert in the | field of multiple sclerosis. Not all neurologists are familiar with MS. | Contacting your local MS Society can help with location of an MS | knowledgeable neurologist in your area. | |  The person who is diagnosed with multiple sclerosis needs to become as | educated as possible about the disease because it is usually the person with | MS who makes the medical decisions with the counsel of the physician. | |  Note: Be aware that there is disability caused by the disease itself and | disability due to noncompliance with treatment or complete inactivity. | Physical, occupational therapy and a healthy diet can often help with | strength and movement even in the most severe cases of the disease. | | | |  Common Symptoms of Multiple Sclerosis (MS) | |  Please understand that this is not a complete list of symptoms. Every | person with Multiple Sclerosis (MS) has a different combination of symptoms. | Occasionally, one will have symptoms seldom seen. This list contains the | most *common* ones. None of the symptoms alone are usually MS. | |  Optic neuritis | |  Vision problems that include cloudy vision, loss of central or peripheral | vision, pain on movement of the affected eye and blindness (usually in one | eye only) | |  Headache | |  This headache is usually experienced in the form of a migraine. | |  Tinnitis | |  ringing ears | |  Weakness | |  Can be generalized but usually confined to one or two limbs. | |  Pain | |  Pain can be anywhere but is usually migratory. Can range from a minor | nuisance, to total immobilizing, debilitating pain. | |  Paresthesias | | … read more »

Response:

Hello!!!  Welcome to the English Version of the ASMS FAQ. For the Spanish Version of the ASMS FAQ please see the following:  Bienvenidos a ASMS, grupo de apoyo para los afectados de esclerosis multiple o interesados en la enfermedad.  Pagina de Lluis Compte: http://usuario.tiscali.es/lcompte/esclerosi/asms.htm All information in this ASMS FAQ* is a combination of information provided by the members of the ALT.SUPPORT.MULT-SCLEROSIS USENET GROUP otherwise known as ASMS  The FAQ also contains Nettiquette (suggestions for posting) information, links to helpful technical sites for newer users.  Index  What is Multiple Sclerosis?  Accepted Categories of Multiple Sclerosis  Common Symptoms of Multiple Sclerosis  Current Approved Treatments to slow progression  Posting Etiquette  Helpful Links What is Multiple Sclerosis?  Multiple Sclerosis (MS) is an inflammatory disease of the Central Nervous System (CNS) – that’s the brain and spinal cord. Predominantly, it is a disease of the connective "white matter" tissue. The white matter is made up of nerve fibers. Nerve fibers are responsible for transmitting communication signals both internally within the CNS and between the CNS and the nerves supplying rest of the body.  In people affected by MS, patches of damage called plaques or lesions appear in seemingly random areas of the CNS white matter. At the site of a lesion, a nerve insulating material, called myelin, is lost. Clinically, MS is a hard condition to characterize because it is very unpredictable and variable. Depending on which areas of the CNS are affected and how badly they are damaged, the type and severity of symptoms can vary greatly.  No two people get MS in exactly the same way and the expression of each individual’s disease is as unique as their fingerprints. However, the different courses of the disease, both within an individual and within the whole population, principally differ in their timing, location and severity. Underneath similar processes (including demyelination and other forms of nerve degeneration) are going on. Although recent research indicates that the biochemical make-up of lesions may vary between different forms of the disease, this is not the reason why people with MS (PwMS) have such widely differing symptoms – it’s because nerve damage to one site usually causes completely different symptoms to damage to another.  In general, people with MS can experience partial or complete loss of any function that is controlled by, or passes through, the brain or spinal cord.  Copied from Paul Jones’s Site, a member of ASMS located at http://www.mult-sclerosis.org/whatisms.html Accepted Categories of MS These categories change frequently as Medical Research moves forward.  Please understand that no two people get MS in exactly the same way and the expression of each individual’s disease is as unique as their fingerprints. The following are the current categories of the disease. Not all people with MS fit into these categories. These are general definitions only. MS is not a disease that every person afflicted with MS fits into these categories neatly. It varies from person to person, which is possibly the main cause of not finding a cure. Is it viral? Genetic? Bacterial? A combination of all three? Is it a lack of a certain vitamin? Throughout the years there have been many theories as to the cause, however a cure or cause has not been found currently.  Relapsing Remitting/ Recessive Remissive Multiple Sclerosis or RRMS*  One feels sick and has one or more symptoms during a relapse. Sometimes these symptoms seem relatively minor (if one is diagnosed) and sometimes they are overwhelming. Between the relapses are stretches of time of varying lengths where one feels well even though one may have some residual disability from prior relapses.  Usually one never knows when a relapse will come or what will activate the disease process. A relapse can totally remit or there can be some residual symptoms that do not change until there is another relapse.  Secondary Progressive or SPMS*  Secondary progressive multiple sclerosis is another form of relapsing -remitting disease. This begins as relapsing-remitting MS but changes so that there is also constant progression. There is a slow or quick downhill slide resulting in increased loss of function. At the same time, it is possible for remissions to occur. A remission improves the symptoms of the relapse but often there is no true recovery of the prior state of health. These symptoms usually slowly continue to deteriorate physical and/or cognitive function.  Primary Progressive Multiple Sclerosis or PPMS*  Primary progressive disease is a slow or more rapid deterioration of physical and/or cognitive function without evidence of any relapse. There is a loss of function from the beginning and that continues at differing rates in different people. There are sometimes plateaus in both of the progressive forms of the disease. These plateaus can vary in time. There usually is little or no improvement of symptoms in Primary Progressive or Secondary Progressive. However, through a healthy diet and exercise, such as swimming, yoga, and other types of less physical exercise, progression has been known to be slowed or in the rarest of cases possibly stopped progression.  Benign MS  Benign MS forms a subset of Relapsing-Remitting MS as defined by Lubin and Reingold and is generally not considered to be one of the major forms of MS, it’s just a milder presentation. In any event, it takes 10-15 years to diagnose benign MS (depending on which school your neuro belongs to) – part of the definition of benign is that 10-15 years have elapsed without significant enduring disability.  Plenty of people with benign MS go on to develop Secondary-Progressive MS. "… the label "benign multiple sclerosis" is often temporary as apparently benign disease often becomes disabling" (Hawkins and McDonnell, J Neurol Nuerosurgery Psychiatry, 1999).  Progressive Relapsing Multiple Sclerosis (PRMS)*  *PRMS is one of the four principle forms of MS – RRMS, SPMS, PPMS and PRMS – as defined by Lubin and Reingold, Neurology, 1996. Recently a few neurologists have hypothesized that PRMS is really a variant of Primary-Progressive but this is not official doctrine.  Malignant MS  Also known as Marburg’s Variant and Acute Multiple Sclerosis. This is a label given to forms of MS where the disease progresses very rapidly from onset leading to severe disability within a relatively short period of time. Fortunately, this form of MS is extremely rare  Transitional/ Progressive MS  This form of MS follows a progressive course from onset, punctuated by relapses. There is significant recovery immediately following a relapse but between relapses there is a gradual worsening of symptoms.  Chronic Progressive MS  Primary Progressive and Secondary Progressive used to be lumped together as Chronic Progressive (CPMS) but this term is no longer officially recognized although you will still see it referred to now and then.  Devic’s Disease  Also known as Neuromyelitis Optica, Devic’s disease is a related condition to multiple sclerosis that is characterized by an attack of Optic Neuritis in both eyes followed by severe inflammation of the spinal cord. (Transverse Myelopathy).  Balo’s concentric sclerosis  This is another very rare disease that resembles multiple sclerosis. Clinically, it is very hard to distinguish Balo’s concentric sclerosis from MS but MRI scans show the lesions in Balo’s to be concentric rings of intact myelin and demyelinated zones. It is more common in China and the Philippines than elsewhere  *Indicates the current 4 major categories currently in use as defined by Lubin and Reingold, Neurology, 1996.  Medications should be discussed with a neurologist who is an expert in the field of multiple sclerosis. Not all neurologists are familiar with MS. Contacting your local MS Society can help with location of an MS knowledgeable neurologist in your area.  The person who is diagnosed with multiple sclerosis needs to become as educated as possible about the disease because it is usually the person with MS who makes the medical decisions with the counsel of the physician.  Note: Be aware that there is disability caused by the disease itself and disability due to noncompliance with treatment or complete inactivity. Physical, occupational therapy and a healthy diet can often help with strength and movement even in the most severe cases of the disease.  Common Symptoms of Multiple Sclerosis (MS)  Please understand that this is not a complete list of symptoms. Every person with Multiple Sclerosis (MS) has a different combination of symptoms. Occasionally, one will have symptoms seldom seen. This list contains the most *common* ones. None of the symptoms alone are usually MS.  Optic neuritis  Vision problems that include cloudy vision, loss of central or peripheral vision, pain on movement of the affected eye and blindness (usually in one eye only)  Headache  This headache is usually experienced in the form of a migraine.  Tinnitis  ringing ears  Weakness  Can be generalized but usually confined to one or two limbs.  Pain  Pain can be anywhere but is usually migratory. Can range from a minor nuisance, to total immobilizing, debilitating pain.  Paresthesias  Usually numbness and/or tingling ? this can occur anywhere but usually occurs in the arms and legs.  Itching  Everyone itches now and then but scratching will usually relieve normal itching. In a person with MS the itching may be intense and when scratching the itch, the surface skin may be numb to the touch and the itch much deeper making it impossible to reach.  MS Hug  Tightness (sometimes painful) from near the spine to the sternum – can be bilateral.  L’hermitte’s Sign  Pins and needles going down the back (and sometimes into the limbs) when the chin is touched to the chest

… read more »

Response:

Hello!!!  Welcome to the English Version of the ASMS FAQ. For the Spanish Version of the ASMS FAQ please see the following:  Bienvenidos a ASMS, grupo de apoyo para los afectados de esclerosis multiple o interesados en la enfermedad.  Pagina de Lluis Compte:  http://usuarios.lycos.es/lluiscompte/esclerosi./asms.htm All information in this ASMS FAQ* is a combination of information provided by the members of the ALT.SUPPORT.MULT-SCLEROSIS USENET GROUP otherwise known as ASMS  The FAQ also contains Nettiquette (suggestions for posting) information, links to helpful technical sites for newer users.  Index  What is Multiple Sclerosis?  Accepted Categories of Multiple Sclerosis  Common Symptoms of Multiple Sclerosis  Current Approved Treatments to slow progression  Posting Etiquette  Helpful Links What is Multiple Sclerosis?  Multiple Sclerosis (MS) is an inflammatory disease of the Central Nervous System (CNS) – that’s the brain and spinal cord. Predominantly, it is a disease of the connective "white matter" tissue. The white matter is made up of nerve fibers. Nerve fibers are responsible for transmitting communication signals both internally within the CNS and between the CNS and the nerves supplying rest of the body.  In people affected by MS, patches of damage called plaques or lesions appear in seemingly random areas of the CNS white matter. At the site of a lesion, a nerve insulating material, called myelin, is lost. Clinically, MS is a hard condition to characterize because it is very unpredictable and variable. Depending on which areas of the CNS are affected and how badly they are damaged, the type and severity of symptoms can vary greatly.  No two people get MS in exactly the same way and the expression of each individual’s disease is as unique as their fingerprints. However, the different courses of the disease, both within an individual and within the whole population, principally differ in their timing, location and severity. Underneath similar processes (including demyelination and other forms of nerve degeneration) are going on. Although recent research indicates that the biochemical make-up of lesions may vary between different forms of the disease, this is not the reason why people with MS (PwMS) have such widely differing symptoms – it’s because nerve damage to one site usually causes completely different symptoms to damage to another.  In general, people with MS can experience partial or complete loss of any function that is controlled by, or passes through, the brain or spinal cord.  Copied from Paul Jones’s Site, a member of ASMS located at http://www.mult-sclerosis.org/whatisms.html Accepted Categories of MS These categories change frequently as Medical Research moves forward.  Please understand that no two people get MS in exactly the same way and the expression of each individual’s disease is as unique as their fingerprints. The following are the current categories of the disease. Not all people with MS fit into these categories. These are general definitions only. MS is not a disease that every person afflicted with MS fits into these categories neatly. It varies from person to person, which is possibly the main cause of not finding a cure. Is it viral? Genetic? Bacterial? A combination of all three? Is it a lack of a certain vitamin? Throughout the years there have been many theories as to the cause, however a cure or cause has not been found currently.  Relapsing Remitting/ Recessive Remissive Multiple Sclerosis or RRMS*  One feels sick and has one or more symptoms during a relapse. Sometimes these symptoms seem relatively minor (if one is diagnosed) and sometimes they are overwhelming. Between the relapses are stretches of time of varying lengths where one feels well even though one may have some residual disability from prior relapses.  Usually one never knows when a relapse will come or what will activate the disease process. A relapse can totally remit or there can be some residual symptoms that do not change until there is another relapse.  Secondary Progressive or SPMS*  Secondary progressive multiple sclerosis is another form of relapsing -remitting disease. This begins as relapsing-remitting MS but changes so that there is also constant progression. There is a slow or quick downhill slide resulting in increased loss of function. At the same time, it is possible for remissions to occur. A remission improves the symptoms of the relapse but often there is no true recovery of the prior state of health. These symptoms usually slowly continue to deteriorate physical and/or cognitive function.  Primary Progressive Multiple Sclerosis or PPMS*  Primary progressive disease is a slow or more rapid deterioration of physical and/or cognitive function without evidence of any relapse. There is a loss of function from the beginning and that continues at differing rates in different people. There are sometimes plateaus in both of the progressive forms of the disease. These plateaus can vary in time. There usually is little or no improvement of symptoms in Primary Progressive or Secondary Progressive. However, through a healthy diet and exercise, such as swimming, yoga, and other types of less physical exercise, progression has been known to be slowed or in the rarest of cases possibly stopped progression.  Benign MS  Benign MS forms a subset of Relapsing-Remitting MS as defined by Lubin and Reingold and is generally not considered to be one of the major forms of MS, it’s just a milder presentation. In any event, it takes 10-15 years to diagnose benign MS (depending on which school your neuro belongs to) – part of the definition of benign is that 10-15 years have elapsed without significant enduring disability.  Plenty of people with benign MS go on to develop Secondary-Progressive MS. "… the label "benign multiple sclerosis" is often temporary as apparently benign disease often becomes disabling" (Hawkins and McDonnell, J Neurol Nuerosurgery Psychiatry, 1999).  Progressive Relapsing Multiple Sclerosis (PRMS)*  *PRMS is one of the four principle forms of MS – RRMS, SPMS, PPMS and PRMS – as defined by Lubin and Reingold, Neurology, 1996. Recently a few neurologists have hypothesized that PRMS is really a variant of Primary-Progressive but this is not official doctrine.  Malignant MS  Also known as Marburg’s Variant and Acute Multiple Sclerosis. This is a label given to forms of MS where the disease progresses very rapidly from onset leading to severe disability within a relatively short period of time. Fortunately, this form of MS is extremely rare  Transitional/ Progressive MS  This form of MS follows a progressive course from onset, punctuated by relapses. There is significant recovery immediately following a relapse but between relapses there is a gradual worsening of symptoms.  Chronic Progressive MS  Primary Progressive and Secondary Progressive used to be lumped together as Chronic Progressive (CPMS) but this term is no longer officially recognized although you will still see it referred to now and then.  Devic’s Disease  Also known as Neuromyelitis Optica, Devic’s disease is a related condition to multiple sclerosis that is characterized by an attack of Optic Neuritis in both eyes followed by severe inflammation of the spinal cord. (Transverse Myelopathy).  Balo’s concentric sclerosis  This is another very rare disease that resembles multiple sclerosis. Clinically, it is very hard to distinguish Balo’s concentric sclerosis from MS but MRI scans show the lesions in Balo’s to be concentric rings of intact myelin and demyelinated zones. It is more common in China and the Philippines than elsewhere  *Indicates the current 4 major categories currently in use as defined by Lubin and Reingold, Neurology, 1996.  Medications should be discussed with a neurologist who is an expert in the field of multiple sclerosis. Not all neurologists are familiar with MS. Contacting your local MS Society can help with location of an MS knowledgeable neurologist in your area.  The person who is diagnosed with multiple sclerosis needs to become as educated as possible about the disease because it is usually the person with MS who makes the medical decisions with the counsel of the physician.  Note: Be aware that there is disability caused by the disease itself and disability due to noncompliance with treatment or complete inactivity. Physical, occupational therapy and a healthy diet can often help with strength and movement even in the most severe cases of the disease.  Common Symptoms of Multiple Sclerosis (MS)  Please understand that this is not a complete list of symptoms. Every person with Multiple Sclerosis (MS) has a different combination of symptoms. Occasionally, one will have symptoms seldom seen. This list contains the most *common* ones. None of the symptoms alone are usually MS.  Optic neuritis  Vision problems that include cloudy vision, loss of central or peripheral vision, pain on movement of the affected eye and blindness (usually in one eye only)  Headache  This headache is usually experienced in the form of a migraine.  Tinnitis  ringing ears  Weakness  Can be generalized but usually confined to one or two limbs.  Pain  Pain can be anywhere but is usually migratory. Can range from a minor nuisance, to total immobilizing, debilitating pain.  Paresthesias  Usually numbness and/or tingling ? this can occur anywhere but usually occurs in the arms and legs.  Itching  Everyone itches now and then but scratching will usually relieve normal itching. In a person with MS the itching may be intense and when scratching the itch, the surface skin may be numb to the touch and the itch much deeper making it impossible to reach.  MS Hug  Tightness (sometimes painful) from near the spine to the sternum – can be bilateral.  L’hermitte’s Sign  Pins and needles going down the back (and sometimes into the limbs) when the chin is touched to the … read more »

Response: